Diferencias en calidad de vida relacionada con la salud entre pacientes en ventilación mecánica domiciliaria de distinto origen.
- López-Campos Bodineau, José Luis
- Failde, Inmaculada
- Masa Jiménez, Juan Fernando
- Benítez Moya, José María
- Barrot Cortés, Emilia
- Ayerbe García, Rut
- León Jiménez, Antonio
- Windisch, Wolfram
ISSN: 0214-6266
Année de publication: 2007
Volumen: 19
Número: 3
Pages: 121-126
Type: Article
D'autres publications dans: Neumosur: revista de la Asociación de Neumólogos del Sur
Résumé
OBJECTIVES: To study health-related quality of life (HRQL) of patients receiving home mechanical ventilation (HMV) for different causes using a new specific questionnaire (SRI). METHODS: Observational transversal multicentre trial in which 5 hospitals participated. Patients enrolled were scheduled for one only visit, where sociodemographic and clinical data were recorded, and the SRI questionnaire was administered. Comparison of the SRI results between diagnostic groups was performed. RESULTS: One hundred and fifteen patients (33 thoracic cage, 37 obesity hypoventilation syndromes, 18 neuromuscular, 12 tuberculosis sequelae, and 15 chronic obstructive pulmonary disease) were included. Global HRQL evaluation was similar for all disease groups. However, patients with an obstructive component in the pulmonary function tests resulted to have a different punctuation in several scales of the questionnaire. Neuromuscular patients had a worse punctuation on PF scale (26 ± 29 vs. 46 ± 25; p = 0.006) and required HMV during more hours of the day than the other diagnostic categories (10.8 ± 5 hours vs.8.2 ± 2.5 hours; p = 0.046). CONCLUSIONS: Although SRI is similarly impaired in patients receiving HMV, the differences found between the diagnostic groups set different profiles for patients with obstructive, restrictive o neuromuscular diseases